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Successfully treated for Polymyalgia Rheumatica
Polymyalgia Rheumatica (PMR) | Last Active: Nov 9, 2023 | Replies (101)Comment receiving replies
fatigue and weakness for me too, I had to increase the prednisone dose from 5 to 7.5mg and it seems to have helped. I think I was tapering too quickly in an effort to get off the stuff. Switching now to .25mg taper per month. Control of the disease appears to be an extended process with plenty of side effects. For me the side effects of the disease and meds are increased upper body fat, thinning skin, muscle loss and weakness, fatigue, scintillating scotoma/migraine, and an increase of skin infections. Hopefully slow is the going to be the answer and I hope my adrenals start picking up the slack as the dose decreases.
Replies to "fatigue and weakness for me too, I had to increase the prednisone dose from 5 to..."
Sounds like a good idea, and I hope slowing the taper helps. When my dad got to 7.5 mg, we had to slow the roll because he also had a major flare trying to go to 5 mg. He went successfully to 6.25 mg (this had to do with the various denominations of tablets we had at home). It'll be a full month he's on 6.25 by the time he's tested again this weekend.
Now the plan is to start dropping by .25 mg. His rheumatologist normally has him get labs every 2 weeks.
He takes low dose naltrexone (LDN) for fatigue.
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Have you found anything that helps the exhaustion? The exhaustion is as debilitating as the pain...😢😖🥴😵💫