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@budisnothome

Hi Bob. Very long journey. Had pc robotic October 2019. gene testing 5% chance of reoccurring in 10 years. !6 months later 35 radiation treatments to lower tummy lymph nodes. Lots of bleeding, 40 hyperbaric oxygen chamber sessions to try to stop bleeding. Nope. Total incontinence. I had the AUS 800 installed August 2021. Failed. Fix surgery December 2021 nope. Emergency surgery Feb 2022 after cysto showed stricture in urethra. AUS 800 cuff had eroded into my urethra causing many UTI's. Found urologist in St Paul that specializes in radiation caused strictures. I have radiation cystitis and radiation proctitis. Suprapubic catheter installed Christmas 2022, giving my urethra time to heal before urethroplasty. That was done April 2023. Had both foley and suprapubic catheter for 5 weeks. Now only suprapubic. It gets changed every 4 weeks. Cytso in August to make sure urethra is healing. If it is, suprapubic until maybe December or January , another cysto and if healed we are going to try the AUS800 again. He is hoping for a 50% success rate this time. The only other choice for me is to take out the bladder or make a direct tube to tummy, Ostomy bag forever. Will hope 50% success rate is better choice for now. I always were shorts, I have for years. My leg is exposed all the time. People get used to it. I tell some people I have a leg bag, you have ..... whatever they are using. Cane, crutches, glasses, you name it. This is mine for a while. Night bag at night, Medicare pays for the bags and supplies. The Mayo store has the good stuff. Other places bags don't work as well. I hope my long story helped you. If I can answer anymore questions please let me know, I am very experienced with the catheters, including self catheterizing, many times per day. It becomes you and this is how you live. Nothing too it, Good luck. I am in Rochester.

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Replies to "Hi Bob. Very long journey. Had pc robotic October 2019. gene testing 5% chance of reoccurring..."

Hi Bud,
Wow you have been through and hell and back. The side effects or clean up activities after PC treatment were not really discussed much with me before hand. You? It is like a whole new world of problems I did not imagine but with Gleasons 7's and 8 not much choice. Surgery or Radiation. I had to look up the AUS800 to learn it is about sphincter repair. So you have had lots of surgeries? I have never had an anesthesia issues until this last surgery just a month ago for stricture removal. Nightmare like dreams for 3 or 4 days after. Wake up dreaming about getting a glass and my hand is up in the air like I am trying to reach one. What is that? I also went through the hyperbaric 02 treatments hoping it would help healing but not much if any effect. It did accelerate the development of cataracts and had them removed in March. I did not know that the 2x atmospheric pressure in the chamber could mess with your vision. You have a good attitude Bud and I am sure that helps you cope with issues most people will never know about. Thanks for sharing your experience. I am learning more. Wishing you the best as your journey with PC continues. BTW I am in Phoenix.
Bob