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DiscussionHas anyone been diagnosed with a pilocytic astrocytoma as an adult?
Brain Tumor | Last Active: Mar 29, 2021 | Replies (66)Comment receiving replies
Replies to "Hello, @normal615, and welcome to Mayo Clinic Connect. I am so grateful you posted this note..."
Helllo Lisa,Thanks for your comments and in response to how Ann presents at the moment and particularly Parkinson's.Ann has severe motor problems with a pronounced right sided weakness.Walking without support is very limited and without support she would fall.Her cognitive fuctions are also impaired and she also suffers from aphasia which is sad as she was very articulate in earlier times and this causes her much frustration.The brain tumour is located in the basal ganglia and inoperable due to the risks with removal and she subsequently had 16 sessions of radio therapy "to knock the stuffing out of the tumour".She does not have any pronounced tremour but has problems with grip to her right hand so things like brushing her teeth and eating are problematic.
Her doctors essentially describe her features as Parnkinsonism,there is also some brain atrophy,she needs full assistance in the Bathroom with her personal care.
The above is generally how she presents.We will have been married 50years this coming Christmas and have enjoyed extensive travelling in the past but this is now impossible which is very sad.In all this however we count our blessings as parents and grandparents.
I trust the above is of interest.
Best wishes.