I try to stay active. I still golf and go to exercise class. I did golf in a big outing yesterday and today I'm resting. I used to be able to go, go, go!

Hi Sue,
I guess I’m not as brave as a lot of our fellow bloggers. I know I have written to you many times. You seem knowledgeable and strong.
I’m struggling Sue, really badly. Mentally. Since I saw Dr Swenson the other day. He said he’s concerned…..

Maybe you can share with me how you deal with all of this.. I just got Diagnosis this past year. Dr Swenson wants to start me on Azithromycin and ethambutol, slowly because I’m so sensitive. I guess he feels the MAC needs to be treated so it doesn’t turn into cavities etc. I am so terrified….I can hardly function. My reaction to antibiotics is not good…I get so sick. The thought of being on them for such a long time freaks me out. It’s like I’m boxed in a corner.
My entire rib cage hurts and he feels the infection and inflammation is exacerbating my costochondritis. When I wake up in the morning and open my eyes, I am immobilized with fear at the prospect of taking that medicine for such a long time….., and/or what will happen to me if I don’t. I pray……
As soon as he speaks to my Opthomologist he wants me to start first with the azithromycin three times a week, then add the ethambutol. He wants my eyes checked every three months.

He said if it makes you too sick you will stop. So then I could develop cavities and not be able to breathe. I’m so discouraged and very scared Sue..

Sue, how did the meds affect YOU.
Any suggestions? Bon