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Anyone have a neuroendocrine tumor (NET) in the spine?
Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (56)Comment receiving replies
That sounds like an excellent plan, @rrlbees. Conferring with the doctor at Sloan Kettering should give you another perspective on what type of treatment plan is best for you!
I look forward to getting your updates as you continue on this NET journey with the rest of us!
Replies to "That sounds like an excellent plan, @rrlbees. Conferring with the doctor at Sloan Kettering should give..."
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Well my meeting with my oncologist went very well in my opinion. Probably the longest I’ve ever had with him. About 1 hour. We discussed everything under the sun and my gallium scan and results.
I was most happy with him thinking it was a great idea of engaging Dr Raj at Sloan Kettering. Said he was going to recommend it. He’s going to take care of getting everything to her and he’s going to talk to her himself. I’m setting up an appointment myself. He mainly wants to talk to her about treatment because he said there’s a few options for treatment of the bone Mets.
He also still wants to do genome testing via a biopsy to get some insight into my specific cancer cells which can help pinpoint the best treatment. We leave tomorrow for a week in Maine so he’s going to try and set up the biopsy for the week after. Of the 6 bone Mets locations he said the biopsy will be easiest done in the rib.
While I went in somewhat anxious he also did a good job at reducing mine and my wife’s anxiety. So that helped.
More later.