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One-week pre Autogolous BMT: I'm afraid I'm not prepared

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 24, 2023 | Replies (34)
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@jstpeachey

How sweet of you to ask, I’m actually doing really well, staff is amazed at my progress. I can’t lie, I did have a rough bout with diarrhea, my bumm is still trying to recover, lol. But all in all I’m doing good. My first fluids I was given was on day +5 for sodium and calcium, yesterday just sodium. Still got my hair, I know it’s still early, but I’m hopeful. Showers seem to wipe me out, but I get’er done.

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Replies to "How sweet of you to ask, I’m actually doing really well, staff is amazed at my..."
Lori, Volunteer Mentor | @loribmt | Jul 20, 2023

I’m excited for you that you’re doing so well! Hopefully you’ve gotten through the worst of the side effects now, aside for the little reminder in the nether regions. (A & D ointment…just a suggestion 😅)
Maybe you won’t lose your hair! You may get lucky with the scaled back pre-conditioning chemo. That’d be great! Finger’s crossed…but if your locks do make an exit, they shall return.
That exhaustion is a joy, huh? I remember those showers too…like is it even worth the effort?! Short answer, probably. LOL. It’s those little familiar routines that can help the disposition to keep us moving forward. Keep up the good work.

So, I have to ask, since you were very concerned pre-transplant that you weren’t ready…what, if anything, did you not need or wish you had available?

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