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@donna33

Thank you so much. I wasn’t ever told this about Prolia.
I have only had one injection,
but due to the side effects and after much praying I decided not to get any more.
I’ve had RA for 39 years. Do you think I should see the Rheumatologist about prescribing the necessary drugs Vs. My Endocrinologist?
I’m currently in the process of changing Rheumatologists because my current one
dismissed the leg pain as a side effect of Prolia.
The Tymlos you mentioned sounds like something I should look into. I have a sensitive system and very prone to side effects. I just noticed that it can cause inflammation as one of the more Common side effects.
I already have a lot of that from
RA, so I would have to proceed with caution.
Which type of specialist prescribes your osteoporosis meds?

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Replies to "Thank you so much. I wasn’t ever told this about Prolia. I have only had one..."

@donna33 I see an endocrinologist for bones and a bunch of other docs (rheumatology. nephrology, etc.).

I have a lupus diagnosis and recently very high positive antibodies for scleroderma. I am almost done 2 years of Tymlos.

What saved me with this medication is that the injection pen has 8 clicks to measure dosing. A full dose sent me to the hospital! I talked with docs and restarted at 2 out of 8 clicks and move up so as to give my body a chance to adjust. I got up to 6 clicks and my doc was happy. Then I got up to 7 for several months. I still cannot take the full dose. I go up and down between 6 and 7 clicks depending on what I am doing that day and how I am reacting.

Some days I have no side effects. In the beginning I had some headache, nausea, dizziness and heart palpitations. I switched to mornings. In any case over time the side effects eased as my body got used to it. I have low blood pressure so I make sure to hydrate and have something salty and I check my bp.

It sounds like you could ask about doing Tymlos but make sure of the best timing since Prolia can affect the effectiveness of Tymlos so maybe it should be out of your system first. You have not had a lot of Prolia so maybe you can follow with Tymlos. For those who have been on Prolia a long time I have been told Tymlos isn't as effective anymore. Ask your doc!