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First Lanreotide Injection: Any tips about diet and side effects?

Neuroendocrine Tumors (NETs) | Last Active: Aug 16 7:34am | Replies (73)
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@alisonn

Did you initially have surgery, and if not, why not? Did doctors not recommend it or was it not possible? What grade are you? Thanks.

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Replies to "Did you initially have surgery, and if not, why not? Did doctors not recommend it or..."
kellysg | @kellysg | Jul 20, 2023

I had surgery in 2007 when they found the tumor. They removed it, along with most of my small intestine. I had follow ups and scans every 3 months after that for the first year. I was under the impression that the surgery had removed all the cancer, only to find out later that it was other places.
I now scan every 6 months, and went thru PRRT treatments in 2021, when the cancer started getting really active. PRRT has stopped the tumor growth and I've had no new lesions or nodules since!!!
I honestly don't know anything about the grade...

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