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Seeking a second opinion

Pancreatic Cancer | Last Active: Jul 19, 2023 | Replies (24)

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@frygirl777

My oncologist says a definite NO to the cold socks & gloves. I bought some and now am trying to sell them. I too was concerned about neuropathy. Your oncologist should be willing to reduce the dosage of Oxaliplatin if you begin experiencing neuropathy. Mine reduced my dose by 20% and I have had no lingering neuropathy. I still have tingling up to 4 days after my infusion but you will be susceptible to cold. That is a known side effect of this drug.

I use Boiron Kali Phosphoricum homeopathic pellets for my tingling that you dissolve under your tongue (available on an Amazon of any health food store). It really works & quickly!!!

You should also be taking Vit B Complex daily as this is known to prevent neuropathy. These are what are working for me personally.

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Replies to "My oncologist says a definite NO to the cold socks & gloves. I bought some and..."

Thank you very much!

@frygirl777 , the big question is did your oncologist explain why he/she said NO so emphatically, or explain any risks?

For all, I don't remember if I addressed it in an earlier post, but some patients experience a phenomenon called "coasting," in which the CIPN continues to get worse for a while even after chemo is reduced or stopped. One paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3480245/

It took several months after stopping my Folfirinox for the neuropathy to resolve completely.

I bought everything you mentioned)) Thank you again.