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Lesions on the brain and autoimmune disease
Autoimmune Diseases | Last Active: May 15 2:14pm | Replies (54)Comment receiving replies
Hi, just want to let you know that there is a CLIPPERS group on this forum. I have posted my story under @menel. I am in remission after high doses of prednisone worked for me. I am now on Methotrexate (10mg per week) and the neurologist hopes that this will prevent future relapses. He did say that I have a mild form of CLIPPERS, with diplopia being my only symptom. I was diagnosed 2.5 years ago when I was 62.
From what I read there are less than 1000 cases in the US, and my neurologist ( we are in South Africa) have 3 other cases, apart from me. I have read most CLIPPERS articles I could find, so if you want some links, please contact me.
Replies to "Hi, just want to let you know that there is a CLIPPERS group on this forum...."
Do you have a link to the CLIPPERS group? I only know of the "CLIPPERS looking to connect" thread. Thanks!
Hi @menel. Thanks so much for your reply. I do have a few questions for you:
1. Do you have any idea what caused your CLIPPERS?
2. If you don't mind, could you provide a brief outline of your treatment over the past 2.5 years? For example, was the initial bout treated with pred and then you tapered and then went on Methotrexate...or some other series?
3. How were you diagnosed? Full workup and then diagnosed by exclusion?
4. Have you had any relapses? (I had one about 3 months into my treatment).
5. Do you pursue a fitness and/or nutrition regimen that you feel has helped such as the Wahl's Protocol or an anti-inflammatory diet?
5. Oh and I would LOVE any links you can share.
I feel fine now. I have just tiny remnants of numbness in my face and slight vision defects, but naturally I'm wondering what the future may hold.
The only things I can see that would have caused mine was stress (I had just been through a difficult time) and prolonged exposure to household chemicals (I had been restoring a built-in cabinet and literally had my head in it with cleaners and paint and whatnot for two weeks).
I am not doing anything particular in regards to diet and nutrition, but my baseline is 90% vegetarian, 7000 steps a day, 30 min of cardio a day plus hiking and outdoor activities once a week.
I know that's a lot. No hurry but thanks very much for any info. I'm posting this here because I feel our CLIPPERS info applies to so many of these other auto-immune issues. Thank again!
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Hi, thank you! I just noticed that my comment says < 0 cases, that should indeed read "< 0" cases. I don't know how I mistyped that but thank you. And I will check out the forum, I didn't realize there was a separate one. Brilliant!