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MAC & Bronchiectasis | Last Active: Sep 25, 2023 | Replies (81)
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Yes, I find it astounding how little some pulmonologists know! Mine never mentioned a word about nebulized hypertonic saline or airway clearance techniques. I am now streaming the 6th World Bronchiectasis Conference being held in New York. One comment, from a foremost expert/researcher was "Bronchiectasis is a much neglected disease." It is inspiring to see experts from all over the globe coming together to shine light on BE and NTM. And, agreed, thank goodness for our Mayo Clinic group. I've received such important information regarding the management and treatment of BE and MAC. Thank you everyone!
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Every time I read "...Mine never mentioned a word about nebulized hypertonic saline or airway clearance techniques..." I want to scream. We all have access to the Web, and so do they. If unfamiliar with Bronchiectasis, even a rudimentary search turns up these recommendations. And doctors (primarily specialists) who are unfamiliar with uncommon or rare conditions NEED to tell their patients and offer the option of referring them on if they do not have co0lleagues with whom they can consult.
I am convinced that finding Mayo Connect saved me - even though my pulmonologist and his nurse were familiar with MAC & bronchiectasis, he was not very forward-thinking or open to questions. At least they immediately taught me airway clearance (hand-on.)
Sue