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Question about Nuplazid

Caregivers: Dementia | Last Active: Jul 17, 2024 | Replies (16)

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@lena0825

Thank you. We ultimately did get a grant which covers the copay for about a year & is renewable. He's now been on the 34mg dose of Nuplazid for almost 6 weeks. I notice more improvement than with the 10mg dose, which because of mis-communication issues btw the neurologist & the manufacturer, he had to miss an entire week & then went on the higher dosage. He still has occasional delusions about our homeof41+ years not being his or that he "just got here" & wonders "who runs this place/system/organization". He still sometimes does not remember his way around the house, again because he "just moved to this new house". And occasionally does not recognize me as his wife (Capgras). But these are not as constant as before the Nuplazid. We see the neurologist at the end of August & he will evaluate then. More importantly, his memory, executive functioning, visual & auditory comprehension, ability to get his thoughts out, etc. have deteriorated significantly in the last few months. He has also lost an additional 10 lbs. since early 2018, nearly 75 lbs. from 229 lbs. to 156 lbs. Yet his appetite is good. Both his primary & neurologist say it's due to the "disease", i.e. Lewy Body Dementia.

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Replies to "Thank you. We ultimately did get a grant which covers the copay for about a year..."

Your husband sounds much the same as mine was. He would "see" 250 men pushing our travel trailer.I had to go to the county to get information proving that someone hadn't put liens on our house.
Sometimes he would be coherant. He went from 210 to 150 or so pounds.
The worst part was that he was angy with me often because I couldn't fix things for him . We argued a lot. When I heard him say, "We need to talk." I was full of dread.
He was a good man; I learned to live with it. ( but was so stressed.)By the time he started losing a lot of weight he didn't live a long time afterwards.
If he starts sun downing, wandering away from the house in the middle of the night, I solved it by giving him 10 mgs. of Melatonin at 4pm. and again at 9pm .The only time he wandered again was when my son forgot to give him his first dose until 6pm. He had Lewey Body disease. He had care from a psychiatrist that helped him some.