Autowren, I am reading posts to learn more about autoimmune problems for my husband who remains undiagnosed despite seeing a number of specialists and read your post. At the same time, I was listening to NPR and heard this discussion that you may possibly find helpful:
https://wamu.org/story/23/07/17/in-good-health-the-complexities-of-autoimmune-disease/
(Just click on LISTEN to hear the 34 minute podcast that may be well worth your time.)
The following 3 speakers talk about the difficulty in getting diagnosed and treated. They address BLACK WOMEN specifically.
Dr. Mehret Burri Talabi from The University of Pittsburgh School of Medicine
Joy Buie, Director of Research at the Lupus Foundation of America Joy Buie
Dr. Lilyana Amezcua, the Multiple Sclerosis Comprehensive Care and Research Group's interim chief
Thank you for sharing your plight. I'll look for your updates in the future.