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Chronic pain - Let's talk

Chronic Pain | Last Active: Jul 7 4:16pm | Replies (375)

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@ladyjane85

dbentley - I had the pain stimulator put in about 3 years ago, one<br>that St Judes uses, true it rumbled my body badly, did no good, and<br>would continue to rumble even after shut off. Had it taken out last<br>year. True there may be a newer model, but I am reluctant to have a<br>6th surgery with 38 staples again. Nothing seems to work for me. hank<br>you - you have an updated one that seems to work better, but one can<br>only withstand so many surgeries.....<br>

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Replies to "dbentley - I had the pain stimulator put in about 3 years ago, onethat St Judes..."

Yes that sounds bad all thoughts surgeries. I think because I have a<br>degenerative disease surgery has never been a option for me.<br>So what do you do for your pain? Do you see a specifically a pain Dr.? I<br>do , and his NP specializes in pain also.<br>I think the important think is you have pain relief. You have the right to<br>live without debilitating pain. You should have pain relief. Why did they<br>give you all those surgeries? Are you taking pain medication? There is<br>nothing wrong with taking the right pain medication for your pain. No<br>matter what the medication. Under a pain Drs care you will be fine they<br>won't let anything bad happen.<br>So how is your pain?<br>

I have gotten myself involved in a few organizations through Facebook and I<br>like to just use twitter because I read a lot and its fun. The things I'm<br>doing are for the endangered animals and some for the environment. I do<br>writing and petition signing and sharing on Facebook. Animal abuse is<br>something I've always worked against but with Facebook there are horrible<br>things on there. I like political science so I'm always talking and<br>studying that. The other new thing I'm doing is I live on St Regis River in<br>the Adirondacks. Iv got several apps from Cornell for bird identification,<br>I have a Hugh nest in my try and they have a nest watch and bird feeder<br>watch and mostly I do it from bed or my kitchen window or front French<br>doors. There are bald eagles I see all the time and blue heron. I'm writing<br>without my glasses I hope its not to bad. I am on a new drug that's helping<br>me its for migraine and I had a epidural 2 weeks ago so I'm OK. Traveling<br>is hard for me still . I'm trying to wright this with my cat crossing me<br>one way then the next .well that's it. I'm doing good. Oh I forgot I'm<br>doing meditation apps for pain or to relax and for sleep and I think they<br>are really helping me. Thanks for listening<br>

I tried the simulator but only as a test. Hurt like hell but when I went<br>back the dr moved the wires around and it<br>Felt good, he mapped where they were and then removed them. I already have<br>a pain pump and did not want another machine in my body, but it felt great.<br>Maybe you should find another dr to test it first for one or two days and<br>match it to your pain, then say no or yes. But give it another try because<br>it might help a lot briansr.Good luck!!!<br>

to @briansr from ladyjan85 Had the trial on neurostimulator and then<br>the implant for over one year. Did nothing better than a TENS<br>unit which is only supposed to make your brain forget the pain and listen<br>to the rumble. Huh. If a lot of pain, up to 9 and 10 level does no good.<br>Since this reqired 38 staples to remove, and I had the best neurosurgeon I<br>certainly would not try it again. They admit it MAY reduce as much as 50%<br>of some pain....<br><br>