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Pending Sjogren's Diagnosis and Doctor Worries

Autoimmune Diseases | Last Active: Jul 21, 2023 | Replies (18)

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@suetex

To Autowren: Let's just assume for a moment that your Dr knows what he's(she) doing and I ask what kind of biopsy was reccommended? When he says that your labs are ok I think that he is saying your highs and lows are not too far out of range. I am not a doctor (just lots of experience) and they don't look alarming to me. However there are "trends". Such as your white count is a little low but your monocytes are a little high, if that continues to go in those directions, a bone marrow biopsy might be in order. These are just my small observations of a small snapshot of your situation, take them as you will. The big take-away here is you don't trust your doctor (with many reasons) so you need a new one. I think we can all agree on that. It is your right and your health. Please know that we are with you in spirit.

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Replies to "To Autowren: Let's just assume for a moment that your Dr knows what he's(she) doing and..."

Hey there! Thank you so much for your response! Ironically, my provider has now clarified via email that he does *not* recommend a biopsy at this time, which has confused me a little bit, but it looks like I have more labs pending. The original message suggested a minor salivary gland biopsy to definitively diagnose Sjogren's.

I'm going to try to hold on to hope in my provider for just a little while longer - I am not a medical professional, and it could be that these things just seem confusing on my end. (Also, finding providers with availability has been a little tricky.) But I truly appreciate your reassurance - I will absolutely be sure to take action if the feeling that my provider doesn't mesh with me grows!