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Hi Lady Jane I'm sorry to hear how much pain your in.I have learned that<br>nobody understands or can feel how bad are pain is. I used to think if only<br>my Dr could feel my pain then he would know. So after being in severe<br>chronic pain for years I learned you have to express how much pain your in.<br>If you are like me that's hard to do. You have to do it. You have to<br>communicate the real level of your worst pain. I know that edrenalin and<br>being out with people can distract us from our pain. That makes it hard to<br>feel and say what pain level you are at. They always say what is your pain<br>right now, but you have to think about when you get home and when your in<br>pain. That is the number I would tell otherwise your not going to get<br>enough good appropriate pain relief. I know your not getting 0ain relief<br>because your in pain all the time. You can't act nice. You have to be<br>strong and tell the truth about your real pain so you don't have to be in<br>pain all the time. You have the right to get appropriate good pain relief.<br>You shouldn't be in pain all the time. Tell your Dr tell everyone involved<br>in your care. God bless<br>
Replies to "Hi Lady Jane I'm sorry to hear how much pain your in.I have learned thatnobody understands..."
@ladyjane85-God bless you. I get to feeling bad and then I see there is always someone worse off than me. I have a Pain Pump implanted and also a Spinal Cord Stimulator implanted and while I am not getting very good results from either, many people do get relief with the stimulator. Nervo has the latest one out and you never even know it is on, unlike the older style where you felt the vibrations in your body and had to turn it way down or off to lay down.<br><br>I would suggest you ask your doctor about the stimulator. It is not a bad surgery, you will have the stimulator implanted on one side of your back, under the skin, an incision of about 5 to 6 “ but not deep and one incision over your spine to implant the leads. It will be an incision of about 4”. In a couple of days you will be back to normal except for lifting. I have heard of a lot of people getting real pain relief. I just happen to be one of the ones that it does not help yet (still optimistic) and neither does the pump filled Hydromorphone and Fentanyl.<br><br>Good luck!<br><br> <br>
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@suebreen54 I am starting with my 4th pain mngmnt dr. All have said<br>there is nothing more they can do for me after 5 surgeries ( 2 with<br>rod and screws), spinal needle procedures of all kinds that did not<br>help at all. And over 45 meds that I react badly to or do not work.<br>Every time one goes to these drs one must list your pain level - I<br>list 8 to 9 with some 10 pain. This month I have had 2 periods of 10<br>pain with crying. They know the intensity, but what to do. A visit<br>yesterday - go get another lumbar x-ray to see if there is room to put<br>in a needle for nerve pain relief. How to tell him I have had so many<br>x-rays. So I had x-ray dept call him with why the Feb one isn't one he<br>can look at, but could not get him on phone. I left msg with nurse.<br>Why can't they realize you are having too many x-rays; every 4 months<br>also abdomen and kidney xrays. Yes, they know my pain - I spend most<br>of my time on the bed with burning pain across my derriere from the<br>back sending the periformus nerve signals. I am what they call in<br>looks 15 years younger, but am 86 now. What to live for. I smile for<br>people, so they never see the usual 9 pain. But so many have their own<br>troubles, and drs grow blase (with the e having a french accent mark)<br> @ladyjane85<br>