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Pending Sjogren's Diagnosis and Doctor Worries

Autoimmune Diseases | Last Active: Jul 21, 2023 | Replies (18)

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@rarelybees2889

Hi
Blood tests alone are not the accepted criteria anymore for Sjogrens, according to the ACR-EULAR Classification Criteria. A positive lip biopsy, Anti-SSA that is positive, Schirmer's test and salivary flow test are some of the other tests. I had a negative SSA, but a positive lip biopsy and all other positive criteria.
It is discouraging that some people (and doctors, sadly) don't realize that this disease should never be diagnosed based on blood tests alone.
Here is a great resource https://www.sjogrensadvocate.com/
This website is run by a doctor with Sjogrens and you will learn a lot about the myths and misunderstandings of this complex autoimmune disease.
Its important to find a good rhemetologist, and it sometimes takes awhile to find a well-informed doctor.
I wish you the best and know that you are not alone!
The Sjogren's Foundation also has some good articles and information. Their website is: https://sjogrens.org/understanding-sjogrens
: )

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Replies to "Hi Blood tests alone are not the accepted criteria anymore for Sjogrens, according to the ACR-EULAR..."

Thank you for the information! You actually prompted me to look back and review my labs from earlier this year (from the PCP who referred me to my current rheumatologist), and I realize now that I actually had a positive result for SSA. I'll be sure to ask my provider about this as well when the time comes. And thank you for these links - I'll be sure to give them a look!