← Return to Right upper Lobectomy in April - Numbness, Fullness

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Right upper Lobectomy in April - Numbness, Fullness

Lung Cancer | Last Active: Jul 18, 2023 | Replies (8)

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@lls8000

Hi @whahoo, After reading some of the other threads on this forum about lasting nerve pain, it sounds like the numbness may hang on for a while unfortunately.
I'm wondering if the feeling of fullness may be coming from the Tagrisso. So many of the targeted therapies can run amuck with our gastrointestinal systems. I take a different med (alectinib), but the bloated feeling comes and goes for me. I even feel like look 5 months pregnant sometimes, and I can assure everyone that I'm nowhere near those days! 🙂 It's all bloat. Staying away from carbs seems to help me, but the meds are strong, and it doesn't always work. After three years on this rollercoaster, I've learned that I won't always have control over it. Does the feeling of fullness come and go for you, or is it always there?

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Replies to "Hi @whahoo, After reading some of the other threads on this forum about lasting nerve pain,..."

Hello. Thank you for your reply. I’ve only been on Tagrisso (40 mg) for 3 weeks. Tried 80 mg/day and that was not doable.

It’s hard for me to tell if the right lung fullness is from the Tagrisso or if there’s some fluid buildup. Hoping it’s neither and just “normal”.

The thoracic surgeon said that it may take a couple of months for the numbness and fullness to go away. But I didn’t realize it meant over four months after surgery. So maybe I just need to be more patient. I have a CT scan set up for August and will see the thoracic surgeon right after that perhaps I’ll know more then.

Thanks for your thoughtful response.