← Return to Chronic pain - Let's talk
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Replies to "I've been diagnosed with pulmonary fibrosis with extreme pain due to my psoriatic arthritis. Methotrexate has..."
@jvivian Sorry for your situation Pain is very difficult and when mine is at its worst I can not do anything.<br />
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You can check with right to die groups, but first you need to write to your elected officials to tell them what is happening. This could help U as well as all the rest of us. <br />
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In the news I have already read of many deaths due to the new policy of no opioids. These were from people cut off by official sources who went on the black market and got bad pain medicine that killed them. <br />
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The best thing is to go to another town or state and seek help. Also talk to pain doctor about hospice or the use of another non narcotic drug used to help additics come off opioids. This can also help with pain I am told. Called methadone or something else can’t think of the name right now.<br />
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One person I talked to told me it helped her with her pain, but her doctors did not tell her about it right away because they did not make as much money from it.<br />
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If all else fails there are end of life groups on the internet. Most do not want this, but it may become the real way if they do not do something about the pain.<br />
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One article on Oregon law say that many who are eligible get the end of life pills then never use them. Just knowing they are there and they can take them immediately if the pain get to bad helps them get through until nature (God) take them naturally.<br />
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I can give you more info if you can contact me on my web site, but the controller here will not let me put it on here. If allowed I can give you information on end of life and I will try to find the name of medicine this other person told me that helped her. Good Luck. 19lin<br />
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@19lin to contact another member privately and safely, feel free to use the private message function on Connect. Simple click a member's @username and then click the envelope icon.
Jvivian, sorry for your pain. I understand how it feels and how depressing it can be. I hope you find the answers u r looking for. I will keep you in my prayers!!! Here is hoping your night is better then last. Yours, sharonmay7 <br />
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Hi @jvivian,
You are not alone.
I moved your messages to this discussion "Chronic Pain - Let's Talk" so that you can connect with others like @briansr @19lin @seanbeck @leh09 @ladyjane85 @sharonmay7 @salena54 who know what it is like to live with constant and often extreme pain.
Talk to us. We're here.