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Caregivers: Early Onset Alzheimer's, diagnosis age 19 to 65
Caregivers: Dementia | Last Active: Mar 27 7:33pm | Replies (58)Comment receiving replies
@ilikegreen - thanks so much for this information. It is really helpful and I just downloaded the audio version of the 36-hour day...since physically reading a book has become difficult. Much appreciate you taking the time to send all of this information.
Replies to "@ilikegreen - thanks so much for this information. It is really helpful and I just downloaded..."
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@milomiles
Just a caution. I was recommended this book and bought it early in our Alzheimer's journey ( my husband started having noticeable symptoms at 57) I did not finish it because it was too grim. I imagine that if I read it now, I would just find it wonderfully practical, but as the title indicates, it paints the really tough-to-look-at full blown picture of the burdens of caregiving, and that was not what I needed at the time.
Having shared that caveat about a great recommendation, I will share two other books that I recommend often for early stage caregivers/partners: Contented Dementia, by Oliver James. and Counting on Kindness: The dilemmas of dependency. Both are great at helping you be "patient" centric. The first is great on simple principles that get you more successfully (and less stressfully) through the emotional minefield. The second one unlocks things we do not realize about the difficulties of being someone who needs help and how to avoid the misunderstandings and pain that can arise in that situation.