Thanks for responding. I completely understand the dread feeling - mine starts when I am driving home from work. I know the day will come when I need to be home with him and I am just so scared and uncertain of everything. He has also been embarrassed by his diagnosis. My husband has always been the smartest man in the room - everyone would hand him their phone or call him for their tech problems. This is just such a devastating disease.
I will send you a private message if I can figure out how and maybe we can set up a call sometime?