Well talking about similar symptoms and the fact your neur at Johns Hopkins
validated that it’s common for folks with our type of PN it’s common.

Yet my neur said it’s not from neuropathy. Leaves me baffled. She must know better than that. I’m wondering if she was testing me out/ playing games. Said none of PN patients complain of Fatigue.

I told her I had trouble bending over and getting up putting a 5lb bag of water with koi fish into my pond. Later she stated it as 500 lbs. and I had to correct her. So that wasn’t even close.

Thanks for sharing.