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How to be a good caregiver (bone marrow transplant BMT)?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 17, 2023 | Replies (11)
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@fifi11

I have one more question (well, that's not true... but this is the one that's bugging me). How did you survive? From what I understand, being a caregiver is a full-time job. Actually, we are living on Christopher's income. Our social worker always asks what our income is, but the one we have now won't be the one that we will have in 2 or 3 months.

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Replies to "I have one more question (well, that's not true... but this is the one that's bugging..."
Lori, Volunteer Mentor | @loribmt | Jul 17, 2023

Hi @fifi11 At the time of my leukemia and subsequent bone marrow transplant my husband and I were already retired. My insurance paid for everything but our lodging. They would have paid $10,000 towards that if I’d stayed in my home state. But we insisted on Mayo-Rochester for the transplant so we had to cover the cost of lodging.
Does your husband have insurance for the procedure? Have you looked into whether they pay a stipend for lodging or not?
I’m just really not familiar with what programs are available in OK to help financially. That’s another question for the social worker to answer for you. When she asks about your income is she able to give you ideas for what to do going forward? I know your husband won’t be able to work for quite a few months as his energy level and immuno compromised position will keep him limited.

You mentioned your writing for grant money. Have you gotten positive replies?

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