I am very sorry you are going through all this! It sounds really painful and distressing. It is especially hard when you feel as though the providers aren't listening to you or taking your symptoms seriously. I have been there before with my young son, and it is frustrating.
I have a couple thoughts/suggestions:

Don't give up. As with many things in life, you have to advocate for yourself and don't give up until you find a provider who will do more testing to figure out what is going on. Can you or a family member do some research to find the top rated gastrointestinal providers in your area? You may have to travel to find the best. I travel many hours to visit specialists for my son. Sometimes with rare conditions (I am not implying that you have a rare condition) only saying that IF something unusual or uncommon is happening, at times the providers who have seen more may recognize symptoms/conditions that doctors in small communities may not.

Finally, you noted that you hate doctors and such. I understand why you may feel that way, but having a respectful and open attitude towards providers will really help you in your journey to find answers and help. Even if you have had poor experiences in the past, remember that providers are there to help you. They have really difficult jobs and go into healthcare to help people. If you can go into your next appointment with a mindset of respect, gratitude and openness, with a firm sense of advocating for yourself and freedom to ask questions, it will really benefit your journey towards health. I hope that you can find some answers!

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