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How to be a good caregiver (bone marrow transplant BMT)?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 17, 2023 | Replies (11)Comment receiving replies
Wow, thank you for answering, it's the first time that I go on a blog and I get an answer. Yes, we have a social worker. My biggest problem I guess is that English is my second language (I'm French), so all the medical stuff is like a third language! I am not really aware of American laws when it comes to all this. We just moved to Oklahoma, my family is in France and my husband has none.
Regarding Bubba, I've looked at boarding, but it's more expensive than if we take him with us. I think I'm just overwhelmed, and I make it more complicated than it is! I will read all the websites that you sent me today, call our social worker (talking for me is easier than emailing, I can ask questions right away). I just wanted to thank you both and tell you how much I appreciate responding so fast. TTYL
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@fifififi It must be quite a culture shock for you to come to the US from France and move to Oklahoma…smack dab in the heart of the country. Even more difficult if there is no family around for support. Well, you just gained a new family in Connect. ☺️
Believe me, even without a language barrier, having a bone marrow transplant can seem overwhelming with all that’s required of both you and Christopher. The caregiver has a difficult job…your husband is ‘just along for the ride’. Or at least that’s how I felt as a patient. My job was to focus on my health and following the direction of my transplant team. My poor husband was doing the worrying and the work to pick up my slack. LOL. And believe me there was a lot of slack. 😅
But that hard work all pays off with a healthy second chance with life. You and your husband will get through this too but the logistics aren’t easy with all the travel and such.
From experience the whole transplant scenario can feel so overwhelming. I think the biggest thing was the relocation and logistics of making that happen. Our social worker was very instrumental in pointing us in the right direction. The clinic where your husband will be obviously have other people in the same situation who needed lodging with pets. That would be the easiest for you because it’s a strain on you and your pets not to be together.
You’re so right, all the medical terminology is like a 3rd language even if you’re from the US. 😅 But I learned a lot from my experience so if there’s anything you’re not familiar with just ask me. There are a number of us who have had bone marrow transplants for various blood cancers so you’re not alone here. We all have your back.
Is his transplant in a larger city?