Hi, I’m new here and will share my experience with my metastatic prostate cancer if that’s ok ?? I hope this is put into the proper forum as I’m not exactly sure where that is !! Any help would be most appreciated!! TY
I was diagnosed late July 2022. With a PSA of 37 and a short time later I found out it went into 1 lymph node ! My Gleason score ranged from 6 to 9 according to the biopsies taken ! I went through 44 rounds of external beam radiation and was later put on Abiraterone and 5mg of Prednisone to lower my testosterone level and my PSA went from 37 to almost undetectable, .2 !! I was never given a stage of my cancer, but I was given a life expectancy ( 50% chance to live 5 years ) ! So I assume , not actually told that’s let’s just say not good !! I have many, many questions and being new here I’m not exactly sure where to go or who to ask the questions??? And I never had a previous PSA test until I was diagnosed!! Common knowledge is that it’s not recommended to give anyone a PSA test !! But, One of my Doctors who is ( Really ) in the know told me few things that really upset me about PSA testing that I would like to share with everyone who doesn’t know including Doctors !!! Though you would think Mayo Clinic Doctors would/should know !!
Would someone please reply to my initial message so I know where to go from here !! Many, many questions!!! And who to ask and where to ask ??? TY PS, My doctors have a portal for such things but would rather I make appointments ( Get Paid ) to talk about my questions!!!