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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: 5 days ago | Replies (217)
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@tinae

Thanks Becky, for sharing that I can tell you that I am struggling emotionally right now. Things seem to be going south very quickly here. My concern right now is the meds are not working, so I’m probably going to go off of the methotrexate and the Humira I’ve been on prednisone for nine months which you and I both know it’s got to go. How quickly is this going to turn? Am I going to be able to work and I’m going to to walk up, right? Will I get super dizzy and not be able to walk that’s kind of my struggle right now.

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Replies to "Thanks Becky, for sharing that I can tell you that I am struggling emotionally right now...."
beckyseattle | @beckyseattle | Jul 17, 2023

I remember writing my rheumatologist a letter and handing it to him about seeing myself as one of the homeless crazies in Pioneer Square. I knew I could never say that out loud to him. But I also knew that I couldn’t work the way I was, much less look for a job where I didn’t have to hear. Things looked pretty damn scary at that point.
The vertigo sounds REALLY awful.

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