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DiscussionDo you tell someone with mild cognitive disorder how much they forget?
Caregivers: Dementia | Last Active: Jul 20, 2023 | Replies (15)Comment receiving replies
Replies to "I have Frontal Lobe Dementia and my family isn't too understanding and it makes me sad...."
Hi @babykay, I'm sorry for the pain this causes you at a time when you need support. Some of my father's siblings could not handle his having dementia and it hurt. Some people find it difficult to accept disabilities that are not visible. If you used a wheelchair, your family members might be more sympathetic.
Is there a family member who is more open that you can speak to frankly about your condition, or maybe take to a doctor with you for a briefing? If not, do you have any close friends whom you can take into your confidence?
Before COVID struck, our local Alzheimer's Association, was having weekly meetings for persons with Alzheimer's and dementia and their caregivers. Is there any support like that near you?
I just copied this:
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Im sorry to hear that your family isn't too understanding. You're right when you say you didn't ask for this. I always thought that this disease afflicts the elderly, not a 62 yo. and now our life has taking a major detour but we just try to get thru each day the best way we can. Maybe your family isn't too understanding because they don't know much about the disease and they're scared. I believe that what we don't know scares us. I've had my family read a few things about dementia so they now what we're going thru. And until someone is going thru this journey they will never know what the person and their spouse is going thru. It's a very sad situation so i just keep praying daily cuz some days are better than other and at the end of those days I just take a deep breath, smile and thank God.
Hugs and God Bless