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After diagnosis, do you continue to see your neurologist?

Neuropathy | Last Active: Aug 24 9:13am | Replies (56)

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My neurologist was more accessible pre diagnosis. Once she confirmed I had SFN via biopsy, I think interest was diminished. Although a specialist in SFN, she does she the full spectrum of neuromuscular disorders. And she basically told me I’m lucky compared to other disorders. So IDK 🤷‍♀️. I don’t think that she or my PCP has a whole lot of interest as to how this will affect the rest of my life 😭.

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Replies to "My neurologist was more accessible pre diagnosis. Once she confirmed I had SFN via biopsy, I..."

I have seen 2 neurologists for my autoimmune neuropathy. Both my feet are numb and my left leg feels like it is asleep. Both Neurologists basically said "it is not that bad" LOL! And my GP does not deal with my neuropathy since I have a neurologist. It seems that nowadays, GP's disown any part of your body that is treated by a specialist. I am a nurse and I miss the days of medicine when a GP or internist doctor actually cared and treated you as a whole person.