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Learning Past Cause vs. Quality of Present Life?

Neuropathy | Last Active: Aug 2, 2023 | Replies (52)

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@drs22

Interesting conversation. I would say at this point, I am more of a #2 person. I've talked to different doctors and all say that they don't know the cause and that there is nothing to do but treat the symptoms. I can live with what I have now, but it has gone from my toes to my knees over the years. I keep asking how to stop the progression, but like many of you, there is no answer. It has already impacted my ability to do things I had hoped to do at this point in my life. But I do what I can and am happy with that. I try to exercise and eat healthily as I don't know anything else to do.

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Replies to "Interesting conversation. I would say at this point, I am more of a #2 person. I've..."

Hello, drs22 (@drs22)

I lean heavily toward a #2 myself. To some extent, that's because exercising packs a double whammy: it takes time to do, time away from other things I might prefer doing; and it's too easily put-off-until-tomorrow-able (that's my new word for today, LOL).

Where I'm still a bit of a #1––or maybe it makes me a #3 wannabe––is my love of reading the literature of PN, especially research reports, so that I'm able to answer my friend's questions about PN with at least a modicum of authority.

When time permits, I also send an occasional letter to my legislators encouraging funding of PN research. My letters may end up in dead-letter boxes, but even a half hour's letter writing gives me the feeling that I'm doing a little something for someone besides myself. That's not something everyone needs, but I know I do, and that's why for me, it's important I take that half hour.

Good luck to you! Keep up the exercise and eating healthy! They're the two best things you can do for yourself.

Cheers!
Ray (@ray666)