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How can I stabilize or improve my eGFR?
Kidney & Bladder | Last Active: Jul 18, 2023 | Replies (13)Comment receiving replies
I typically see a nephrologist every 3 months. In between, I also meet with my PCP. I make sure I get bloodwork done every 6 to 8 weeks. When there is a difficiency with the labs, I create a spreadsheet showing each difficiency and its trend and go over with the 2 docs. But that is just me. It really pays to be proactive with getting frequent lab results. If possible, get your eGFR for both creatinine and Cystatin C.
Replies to "@flow I typically see a nephrologist every 3 months. In between, I also meet with my..."
Thank you Ginger and college prof for your replies. I’ve been made to feel like a “ difficult patient” by Drs for wanting that frequent bloodwork, so it’s nice to hear that it’s justified.
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@collegeprof I do the same thing, keeping a spreadsheet! I have one for my renal team, another for my oncology team. And I take both of them to all appointments. They use different labs to process the samples; my oncology labwork is done right on the premises at the cancer center. More than once we have referred to these sheets. I also keep a small notebook that is filled out at each appointment, and indicates vitals plus any other procedures. Most months I have a "bloodbuilder shot" from oncology, and that will usually affect my labs pulled about 10 days later for the dialysis clinic. It's a big balancing act, and understanding our role in being own best advocates for health is important.
Ginger