Connect
← Return to CIDP Support Group
Discussion
Comment receiving replies
I was diagnosed with peripheral sensorimotor polyneuropathy last year with symptoms mostly in my feet and lower legs. This May my left ring finger and pinkie finger went numb. I went to an orthopedic surgeon who diagnosed me with cubital tunnel syndrome and scheduled decompression surgery but sent me for an EMG/nerve conduction test to rule out it coming from my neck. The EMG resulted in a diagnosis of CIDP. So can anybody prepare me for what symptoms I can expect and how you feel due to this. It would be nice to know the treatments also. I do have an appointment with my neurologist in a couple of weeks. Thank You.
Replies to "I was diagnosed with peripheral sensorimotor polyneuropathy last year with symptoms mostly in my feet and..."
Hello @coachrandy, I would like to add my welcome to Connect along with @goldacharna and others. There is another discussion you might find helpful for learning what other members have shared.
--- CIDP (Chronic Inflammatory Demyelinating Polyneuropathy): https://connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy/
I'm wondering if this YouTube video might be helpful. Below are the highlights of video.
Questions:
(0:10) How do you describe CIDP to someone for the first time?
(2:02) What symptoms do you look for when diagnosing CIDP?
(2:41) What can be done to help patients get diagnosed early and properly?
(3:14) How would your treatment differ for adult and paediatric cases?
(4:10) How important is early diagnosis in recovery?
(4:47) What does recovery look like?
(5:25) What supports can be given to people living with CIDP?
(6:08) What are some longterm residual symptoms that patients can expect?
(6:46) What advice would you give to someone recently diagnosed with CIDP?
(7:13) What is one of your most memorable patient stories?
To learn more about The GBS and CIDP Foundation of Canada, please visit
https://www.gbscidp.ca/
It might be helpful to make a list of questions for your upcoming appointment with your neurologist. Can you provide an update after you meet with your neurologist?
Connect
@coachrandy I’m so sorry to hear that you’ve been diagnosed with CIDP. But you’ve come to the right place to get all your questions answered. I added this link from @johnbishop who has mentioned some other discussions for you to check out. After you read the discussions, you’ll probably have lots of questions for the neurologist: write them down in a notebook and then write the answers. And, if you can, have someone go with you to all appointments. Two sets of ears are better than 1!
https://connect.mayoclinic.org/comment/889189/
Everyone on Mayo Clinic Connect is very happy to answer questions and relate experiences so be sure to ask us questions!
Keep in touch and let me know how you’re doing