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It’s okay to say no to your doctors

Neuropathy | Last Active: Jul 29, 2023 | Replies (24)

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@julbpat

Admission to the Epilepsy Monitoring Unit at the hospital was my other option. I believe statistics show that 50% of seizure patients have normal EEGs. That would include me.
When the technician texted me last night and asked me to “ please get back in front of the camera”, I felt such rage! Fury! It’s like all the frustration I have felt, living with this pain for 7 years, and now seizures - it’s all directed at this stupid EEG.
Think I’ll go take some opioids now! Ha.

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Replies to "Admission to the Epilepsy Monitoring Unit at the hospital was my other option. I believe statistics..."

@julbpat most of my kid's seizures are temporal lobe (and bizarre), though they have some absence seizures. Temporal lobe seizures do not show up on EEG making the whole exercise unhelpful.