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It’s okay to say no to your doctors
Neuropathy | Last Active: Jul 29, 2023 | Replies (24)Comment receiving replies
My kid did this in the hospital for 5 days and they kept her up at night and did stressful testing to try to induce a seizure. It was horrible. Evidence-based medicine and insurance requirements seem to be the culprit, along with MD skepticism that patient-supported seizures are psychological in origin.
Luckily my kid has a neuro who prescribes anti-seizure meds regardless. So what was the point?
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Admission to the Epilepsy Monitoring Unit at the hospital was my other option. I believe statistics show that 50% of seizure patients have normal EEGs. That would include me.
When the technician texted me last night and asked me to “ please get back in front of the camera”, I felt such rage! Fury! It’s like all the frustration I have felt, living with this pain for 7 years, and now seizures - it’s all directed at this stupid EEG.
Think I’ll go take some opioids now! Ha.