← Return to Osteoporosis Treatment Availability

Discussion

Osteoporosis Treatment Availability

Osteoporosis & Bone Health | Last Active: Jul 18, 2023 | Replies (39)

Comment receiving replies
@windyshores

I have read that the second and other later infusions tend not to cause the same intensity of reaction.

I am going to request IV hydration before my infusion. I meet with the endo this week. MY eGFR went up to 45 despite dehydration yesterday. I would be happy to get it over 50 with hydration.

My endo is not reducing dose because of my kidneys. He is concerned I will have a bad reaction or that my afib will be triggered.

Jump to this post


Replies to "I have read that the second and other later infusions tend not to cause the same..."

@windyshores, @normahorn, and all...That really sounds smart to me, Windyshores, to get IV hydration prior to the infusion. I must say the staff at Mayo Infusion dept and the doctors frequently reminded me to drink more water, pushing the hydration issue. I think the fact I pushed drinking water even when I was in pain and having difficulty, was the reason I pulled out of the reaction and am doing better daily.

Interesting your eGFR number is lower. Mine stays at about 60 so far. I don't have afib yet, do have edema issues due to primary aldosteronism which causes the body to hold sodium in the blood and kept my potassium levels quite low for many years. Taking Spironolactone as a potassium-sparing diuretic 2X daily and adding potassium supplementation keeps my electrolytes in pretty good ranges. I have pulmonary Sarcoid and vasculitis, neither active at this time. I've taken steroids for the last 30 years at times in high doses, and times in minimal doses. Those meds led to diabetes and of course, worsening bones.

My heart muscle is pretty strong. I have a 4.9 ascending aorta aneurysm that's stable at the high number and may well be my demise, as I doubt there will be major surgery in my future which is one important factor in getting treatments available to improve the days/years I have. My heart rate has been wonky but we've adjusted the medication and it seems to be settling down.

You know, I have a good friend 80 years old, and in pretty good health with none of our issues, more normal aging for her. I don't think I would recommend she have Reclast were it offered. Age is certainly an important factor in this treatment. At 76 with my health, this will hopefully improve my chances of living longer with fewer falls breaking bones that often leads to death.
I've broken vertebrae in a fall, multiple vertebrae are herniated, have broken several bones in both feet, and have debilitating arthritis throughout my body. So, Reclast has the possibility of reducing daily pain, slowing the deterioration of these bones, making my days more comfortable, and preventing fractures that could be devastating.

I hope you have a good chat with your doctor and are able to move forward with this treatment if it's recommended for your better future.
Blessings, Elizabeth