← Return to Learning Past Cause vs. Quality of Present Life?
DiscussionLearning Past Cause vs. Quality of Present Life?
Neuropathy | Last Active: Aug 2, 2023 | Replies (52)Comment receiving replies
Replies to "Love that Ed, sums it up very well. I think I’ve accepted whatever it is and..."
Thank you Debbie. Reading what you had to say was very helpful. I just found this site today and have learned much and found a sense of peace knowing there are others walking this neuropathy path. Thank you again for sharing your experience.
Good evening to some of our most appreciated Connect members. It is wonderful to experience how you all participate and take the time to develop discussions that reach into the future and design lifestyle changes that may be anticipated by all of you or none of you. I wish you had been around ten years or so ago when I was diagnosed with SFN. All I had was a bottle of Gabapentin and a referral to MFR therapy. Then along came the realization that this was a lifetime condition. Thanks to finding Connect to help my life partner with Prostate Cancer, I also received an invitation to be a Mentor for caregivers.
Then I began to spend more time in the Neuropathy group of Connect trying to learn as much as I could about my condition. A year ago......I began falling. My quads would just give way and I would go down. Through the effort of the Neurology team at Mayo I now have a name for my condition and a cause. I have SFN........and the culprit....radiculopathy. Some call it trauma related. That means I had so many falls, accidents, and surgical repairs to my bones that the nerve endings were pinched.
Knowing the cause has been very helpful. I am completing my first year of physical therapy designed for balance and stability......for radiculopathy. My Mayo PTt selects exercises from Medbridge and I do them consistently. I have learned how to fall and how to get up. I have learned that walking figure 8's in your living room helps keep you from falling when you go around a corner. I have learned to keep my balance while walking sideways, backward, and on my tiptoes.
Is this condition progressive? At this point, I am keeping up with it. However, I have no idea what the future holds as the aging issues just keep on coming.
I think my best bet is to tag on to your discussions. I will learn more. So, once again, thank you for sharing and keeping in touch with fellow members.
May you have freedom from pain and discomfort.
Chris