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Did PAXLOVID also relieve your arthritis and autoimmune symptoms?
Post-COVID Recovery & COVID-19 | Last Active: 3 days ago | Replies (329)Comment receiving replies
I, like you, had developed a dx that allowed me to get IVIg. Covid either activated or inflamed my immune system and now u have several autoimmune diseases. Mayo Jax, misdiagnosed me as well. It's pretty bad when you have to beg for testing you know will come up positive. For me it was if they were trying to disprove what my referring neurologist already diagnosed me with. He sent me there for a rheumatologist neurological I had so much going on other than neuro. Oh well. We were fortunate to get diagnosed and the care we need. It's a frustrating condition though. Unlike cancer. We are all just managing symptoms. Living in pain and no true prognosis is very hard. Be well!
Replies to "I, like you, had developed a dx that allowed me to get IVIg. Covid either activated..."
Did u happen to see Wm. Cheshire in neurology? I've spoken to almost a dozen people on a Dysautonomia site that said the same as me and you. Just curious. I saw 5 neuros at Mayo Jax. I have had to submit for addendum to my chart because there was a lot if mischarting. They don't let you record your appts at Mayo in Florida as they say they're following the law, but when you call its always "this call is being recorded" ok, sorry for the rant. It just makes me symptomatic when I think about it.
I’m trying to be seen at Mayos. Have long covid for 6 months and am going there to get advice. Should I forget about going?
I get frustrated reading all the post, cuz they talk about things I don’t know about..
Can I ask what you have? I just tested with High GAD65. I do not have DM and I am very symptomatic with spasms so STIFF PERSON SYNDROME is my 5th autoimmune. I'm so mad at Mayo clinic. It's so sad.
I'm so happy you got a dx and are having treatment.
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Hey, thanks so much for replying!
There's a big difference in our circumstances. I had autoimmune dx long, long before I got Covid (twice).
Boy, you have my sympathy on the Long Covid stuff!
I got Covid the first time in October of 2020. It's all kind of a blur, but I think that there weren't medications for non-hospitalized patients at that time. I stayed home. All of my nurse relatives and friends suggested that I stay away from hospitals unless I really, really needed care there. It was a nightmare in their hospitals.
When the symptoms kept recurring after a couple of weeks, nobody at that time knew about Long Covid. Same as you, people thought I was nuts or telling lies or whatever... I thought I was going nuts and my brain just wouldn't work right!
I will read through your message again (my brain still isn't as sharp as it was).
And let me thank you again for taking the time to reply! It's amazing how helpful people are on this site and how reassuring it is to know that other people are experiencing similar things.
Good luck with your health issues, too!