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Caregivers: Early Onset Alzheimer's, diagnosis age 19 to 65

Caregivers: Dementia | Last Active: Oct 25 4:13pm | Replies (45)
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@blue2

Hi Milomiles,
I am going through a similar situation with the early diagnosis of a spouse and look for someone to chat with. (My husband was diagnosed at age 64 so he retired before he wanted to. Not only was the reality of the diagnosis difficult, but I think it was a bit embarrassing for him to let his partners know.)
I wonder if there will come a time when this becomes something we will get used to. Every morning I wake up and then this dread state comes rushing back and it is shocking and anxiety laden all over again. I wonder if this will ever become our normal.

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Replies to "Hi Milomiles, I am going through a similar situation with the early diagnosis of a spouse..."
milomiles | @milomiles | Jul 17, 2023

Thanks for responding. I completely understand the dread feeling - mine starts when I am driving home from work. I know the day will come when I need to be home with him and I am just so scared and uncertain of everything. He has also been embarrassed by his diagnosis. My husband has always been the smartest man in the room - everyone would hand him their phone or call him for their tech problems. This is just such a devastating disease.
I will send you a private message if I can figure out how and maybe we can set up a call sometime?

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