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High or Fluctuating Chromogranin A Level: What does it mean?
Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)Comment receiving replies
How high are your levels? Mine are up and down in the 500s but the urine test and Dotatate scan(s) were normal.
My doctors think I’m an anomaly, which I guess is medspeak for “I don’t know.”
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2590 chromagranin A, I know HIGH right. Dotatate scan positive area pancreas and octreo scan showed abdominal and pelvis masses. 1 MRI done after all the lab and positive nuclear scans says nothing there. I am so afraid that with all the positives they are missing something that lab scans say is there.