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Osteoporosis Treatment Availability

Osteoporosis & Bone Health | Last Active: Jul 18, 2023 | Replies (39)

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@ess77

@windyshores, @normahorn, and all...Good to hear from you Windyshores. It sounds like perhaps you're dealing with borderline kidney issues or a number in your bloodwork that the doctor advised you to proceed cautiously toward Reclast? If I'm reading between the lines well, you and your endocrinologist came up with this smaller dose per dose more frequently to allow you to have the help from Reclast without the kidney harm? If so, this is great!!! You may have a good solution so you can still partake of the bone treatment you need. I love it!

This sounds like the way my doctors and I work together to make decisions tailored just for me and my crazy body. It's a real treat to have medical folks who will actually work with me like this and who treat me like I might have some information, and knowledge about my own body that can be helpful to my care. What a wonderful feeling this is!

Keep us up with how things go. I wish you good things from this treatment. Just think, you're paving the way for someone else who may need the same type of procedure manipulation to make it work for them. You're a trailblazer.
Blessings, Elizabeth

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Replies to "@windyshores, @normahorn, and all...Good to hear from you Windyshores. It sounds like perhaps you're dealing with..."

My endocrinologist has been nervous about Reclast for me because of my general tendency to have bad reactions, and also because he used to be afraid my very infrequent afib might be worsened. He has not seemed wary of kidney issues but I have not met at length with him and see him this week.

On the other hand the nephrologist I saw for the first time was very concerned about kidneys and says her practice has seen a few individuals experience kidney failure. She said it is very rare but when it happens it is devastating. So she is happy I delayed the Reclast while I try to get my kidney function back up (salt, protein, no NSAID's, and trying to get heart going faster and bp up).

I was pleased that my blood test this morning showed some improvement. I am continuing Tymlos until I can do the 20% dose of Reclast.

@ess77 I totally agree on accommodating docs who pay attention and am so glad you also have that!