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@intlguyct

Been struggling with PN for years and my neurologist has doe nothing to help find the causes other than to give me Gabipenten and Pregablin which didn’t work. Tried Yale and earliest appointment was six months away. My PN is
up past my ankles and in my hands, painful and scary. Noticed many folks in this group have had significant diagnosis of their PN than I have been able to get. How do I find the folks that will put in the effort to discover and give me the care this needs on a timely basis? I’m extremely uncomfortable and at my wits end not knowing where to turn?

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Replies to "Been struggling with PN for years and my neurologist has doe nothing to help find the..."

Hello @intlguyct, Welcome to Connect. I wished I had some good answers for you. I know it's a struggle dealing with neuropathy whether you know the cause or not and it can be painful and scary. I also have idiopathic neuropathy but fortunate for me I only have the numbness and some minor tingling. The reality is that knowing the cause may or may not be helpful in treating the symptoms. My best advice I have to offer is to learn as much as you can about your condition and what treatment options are available that might provide some relief. Two of the best sites to learn more that have helped me are:
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.

I shared my neuropathy journey in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/.

You mentioned that the gabapentin and pregabalin didn't work. Did your neurologist offer any other treatments or suggestions to help with the pain?