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NET - Insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)

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@beth71

Great Info. I am so sorry to hear of your reoccurrences and now mets to the liver. I have been told that it will be like 1.5-2 weeks before the complete analysis of the test will be complete. Apparently a couple of the test they order are send-outs and they are utilized with their analysis. The Endo and Int. Rad Team at Vandy take all results for specimens (approx. 60) taken during test from various arteries and veins (including send-outs) and plot them on a spreadsheet by source and time. Once all results received, then they interpret the test. The Int Rad MD said he also tests the Rt Hepatic artery for liver to check for cancerous cells as they have the same Calcium/Insulin response. I just hope I get some answers that can be treated in some manner as you know frequent hypoglycemic events is a miserable state.

Thanks again for the info and support!

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Replies to "Great Info. I am so sorry to hear of your reoccurrences and now mets to the..."

Keep us posted! After my first 2 surgeries to remove/ablate a total of 11 insulinomas, the calcium stimulation is actually how I know the tumors are in the pancreas and liver. Unable to visualize on imaging but symptomatic and able to determine they are there with the positive calcium stimulation. Very grateful for the procedure - otherwise, I may still be searching for answers. Best wishes!