@normahorn, @windyshores, @johnbishop, and all...I look forward to hearing from Windyshores after her procedure to see how it went. That's possibly a good solution for some folks. I have no idea if the % of med will make a difference in the efficacy, length of its working or other issues. I do know the infusion center at Mayo and my doctor were very clear the timing of the 2nd and 3rd infusions is extremely important. They are required to be a certain number of days apart. Why? Don't know but they were specific. I didn't file it as I know they'll take care of making sure we meet the criteria. But, my 2nd will be very close to July 11, 2024.

It was also important to have the procedure within 30 days, I think, of the bloodwork which cleared me for the procedure. Calcium levels, kidney functions, and such are important and must be approved prior to but within 30 days of the procedure. Makes sense.

I found the staff and providers at Mayo Florida gave me excellent information, pre-testing, and care. I have had deep trust issues as you mentioned Norma and many disappointments and poor care through the years. I have fought hard to be heard. I have, in my later years after many health problems I shouldn't have endured, and am still suffering the consequences, so I'm very pleased to say I do trust my health care team. There was 1 doctor I refused to revisit, another I simply chose to begin to see another person in the department. I require to be treated with respect and courtesy, to be listened to and heard, and for the staff in all areas to answer my questions. It happens now at Mayo.

I pray you will find this trustworthy care team and the relaxation it brings. I'm in charge. I have choices and I make my choices re my body and health care. These folks honor that and we work as a true team.

Blessings, Elizabeth