Connect
← Return to Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions
Discussion
Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions
Neuropathy | Last Active: May 9 10:07am | Replies (38)Comment receiving replies
Yes I just started following connect regularly again.
IVIG therapy not helpful, after having many rounds over several months.
Was Previgin 30 mg every 3 weeks IV over 2 days, I believe.
Did not feel any improvement, and it did elevate my blood pressure after about an hour or more of the Infusion.
Infusion had to be lowered until my bp was in safe measurement.
Replies to "Yes I just started following connect regularly again. IVIG therapy not helpful, after having many rounds..."
Connect
I was very interested to hear from you all re your IVIG infusions. 2 years ago, I also was tentatively diagnosed with CIPD and put on the IVIG. I went through 6 months with infusions every 3 weeks, each over a 3-day period. Unfortunately my nerves tests showed no improvement, so the infusions were stopped. Strangely, I did also develop a severe rash during treatments, even tho I was given benedryl and steroids in the iv, but I attributed it to the Gabapentin I was taking. After I stopped the IVIG and switched to Horizant, the rash disappeared. Anyway, I just thought I would share my experience. Wish I could offer a better report.