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After diagnosis, do you continue to see your neurologist?
Neuropathy | Last Active: Jul 29, 2023 | Replies (15)Comment receiving replies
Keep seeing your neurologist! Maintain communication, because this disease may continue to change on you, and you will need the neurologist’s expertise. Also they keep up with the latest research and development. My neurologist works with me on medication dose changes, prescribes a compounded pain cream, and documents changes in my condition. He is also my resource for neurological testing and interpretation as needed. If you have a neurological condition, you will always need the care of a neurologist. They will help you decide on the frequency and type of follow-up you need from them. And if you have changes, it’s easy to get an appointment as needed.
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I do agree with you on this. But I think it is an excellent question to raise. I see my neurologist twice a year. She is a well known researcher and clinician in SFN. She is easy to talk to and monitors me mainly for changes and progression (usually I know way before her what has changed). But the medication, Low Dose Naltrexone, that I was most interested in, she wasn’t willing to prescribe. And there is no discussion about how to live with this or even how it affects my overall health and quality of life. Would love to have a NP or other support person to brainstorm ideas with.
She is always going to know the latest developments in the field, so I will stay under her care. But sometimes I wonder why.