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How did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Jan 4 4:16pm | Replies (205)Comment receiving replies
Not sure this is correct place to respond. Diagnosed 5/23. Started on 30mg of prednisone and am now on 10 mg of prednisone. My tapering regime at present is to decrease by 1mg per month. So far my tapering has not produced any adverse effects. My main concern now is all the supplements and other meds I have to take because of prednisone. Doctor has prescribed fozamax because my recent dexa scan result is in the danger range for osteoporosis. I am taking 1000 calcium + 2000 vit D3 + vit K + Pepcid (to mitigate possible stomach bleeding from prednisone +occuvite for eye health. My little Sunday-Saturday daily pill container is bursting! Went to my monthly rheumatologist appointment last week and she thinks everything looks great. I don’t want to be pessimistic, but from what I read on this blog, the next phase of tapering could be very challenging. Here’s hoping it won’t be. Liz Ward
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Just try to be optimistic because being pessimistic doesn't do anyone any good.
My Sunday to Saturday daily pill container was overflowing too. I dropped the thing a couple of times and that was a nightmare. I hated it when the plastic doors wouldn't close tightly or broke off. It is easier to laugh about it all now. My pill container isn't quite as full because now I do infusions.
A sense of humor was helpful too. My rheumatologist loved me because I made her laugh. It was my way of diverting her attention when she asked me how much prednisone I was taking.