I did 3 rounds of plasmapheresis while in the hospital & rehab last summer & fall. The first round was 5 sessions every other day. I improved, but after about a week regressed to not being able to walk or use my hands. The second round was 6 sessions every other day & the results were the same. I improved, was sent home, but then a week later was admitted back to the hospital, not being able to move at all. The third round was 6 sessions every other day, but this time I was also given steroids. I improved enough to go back to rehab & eventually home. In addition to the steroids, I continued plasmapheresis every other week.

I'd initially been diagnosed with Guillain Barre, but after 8 weeks & all my ups & downs, the diagnosis was changed to CIDP. I sought a second opinion at Mayo last November & they confirmed this diagnosis. My Mayo neurologists also encouraged me to try IVIG again, despite it not working previously as they explained I'd been given the dosage for Guillain Barre. I abandoned plasmapheresis to try IVIG again which I have been doing weekly along with steroids for the last 14 weeks, I don't feel that the IVIG improved my symptoms & I had unpleasant side effects. I regret not continuing with plasmapheresis as it was working along with the steroids & I did not have side effects. I meet with my Mayo neurologist in a few days to discuss a treatment plan going forward.

Dr. first tried IVIG, but hepatitis inflamed liver. Then plasmapheresis about 10 years ago;
there was a slight improvement after that 1st treatment, but not after that. Medical team kept me on plasmapheresis for 6-7 years with no improvement.

When first neurologist retired, I'm still searching for a replacement. these2 years +. I'm hopeful that there is a neurologist with an effective treatment.

Actually, with supplements chosen for my symptoms, I'm stronger and more active without any medical interference. ..including plasmapheresis which only depleted my energy for 3 days!

Yes, I endure weak limbs, tremors & fatigue, but I also can do basic house keeping, as long as husband does grocery shopping. I do use rollator & cane.