Results from MRI confusing: Is it NETs or not?

We aren’t doctors, I would assume that you have a appointment with your cancer care team to review findings. You have to be careful interpreting test results before you meet your team, as sometimes we read more into the results than they are.

@rocket102, the diagnostic process is anxiety inducing even for the most pragmatic. I can understand why you're on an emotional rollercoaster.

I agree with @kim1965 that only your doctor can interpret the results using all the information from all the tests you've had done. It appears that you've received test results before having a chance to consult with your team.

Things to keep in mind:
Each test is examined and the report written by a pathologist (biopsy, blood work) or a radiologist (imaging studies, like PET scan, MRI, CT, etc.) in isolation. Your oncologist is the person who takes all the pieces of the puzzle, including your clinical examination and medical history and can give you a diagnosis and treatment plan.

It sounds like the diagnosis of neuroendocrine tumor was confirmed in the small intestine. However the MRI may have ruled out the suspicious area in the pancreas. Those are questions I would ask your doctor, like
- Do I have a neuroendocrine tumor?
- Where is it?
- Has it spread?
- What is the area of concern detected in the pancreas?
- What is next?

Rocket, I hope this helps put the concerns into a plan. When is your next appointment with your specialist?

Thank you so much for reaching out and putting this into perspective. Your comments have helped. In fact when the pancreas issue came up the oncologist ordered the MRI because he said he didn’t necessarily think it was a definitive answer . So you are spot on.
Thanks for giving me a space to take a breath! I am grateful for your time.
❤️

Thanks for your reactions and putting me back on the right track.

The appt is on the 21st.

One more thing to, hopefully, brighten your day is the fact that treatments for many different cancers are advancing at speed. Immunotherapy in particular is showing great promise. Merck is the maker of Keytruda, an immunotherapy drug used to treat a broad variety of cancers. Even with the encouraging results thus far, Merck is now partnering with Moderna the mRNA vaccine maker using vaccines targeted for each patient based upon the DNA of their particular tumor. The clinical trials now going on are showing even more positive results. So there is reason to have hope that your cancer too can be thwarted.

Thank you, Lenny!

Please let us know what the doctor says. I had a NET tumor in the tail of my pancreas. I had colonoscopy, endoscope, mri, surgical biopsy of tumor in tail of pancreas, spect ct, pet scan and then 3 weeks of waiting for the doctors to discuss. Finally oncologist will was referred to said it is a NET and I had surgery to remove tail 1/3 of pancreas where the NET was and my spleen in May. I was fortunate to find an oncologist who specializes in NET tumor which has been recommended many times on this forum. We are all here praying for you and to give you support

Omg, that is so kind of you!! The waiting is horrible. Thankfully just a few more days. I appreciate you reaching out!
I hope you are doing well.