Hello.
This all sounds identical to what I have been going through for many years now. However, I did manage to receive a diagnosis 'nuchal fibrocartilaginous pseudotumor' in February 2020 and had surgery to remove pseudotumor 2/20/20. I wish I could say everything has been wonderful since but unfortunately it has been miserable. A neurosurgeon is who finally provided a diagnosis and preformed the surgery. He used old MRIs that many doctors had seen prior. They were flexion/extension MRI (if that helps anyone) notes on MRI stated "thickening of nuchal ligament" and just as others stated I was told it was nothing while the mass continued growing and pain as well as many "strange" symptoms worsened. However, from doing my research I have found that these are reoccurring in some cases and unfortunately for me I believe mine has returned. You would think I would be believed, especially by the Dr. who finally diagnosed but here I am starting this battle again. I hope others have a different outcome.

They believe it is cervical dystonia now and will only treat with trigger point injections and nerve blocks. They offer any and all the pain meds but it doesn't help anyway.

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