@debzle64 Ask your doctor to prescribe you Lyderm gel. There is no cure for oral lichen planus but the Lyderm gel cleared my mouth in about ten days. Now I only use it when I have flare ups which sometimes don’t happen for as long as six months or more.

Hello @debzle64, I would like to add my welcome to Connect along with @rashida and others. There is another discussion you may also find helpful here:

--- Oral lichen Planus: What home remedies or medications help you?: https://connect.mayoclinic.org/discussion/oral-lichen-planus-3/

I had oral Lichen Planus for many years. When I found out that I had Celiac Disease several years ago, I stopped eating gluten. Shortly after that, my Lichen Planus disappeared & has not come back. My dentist confirmed that it was gone. Every time I'd gone in she had seen the thick white LP inside my cheeks.

I have Esophageal Lichen Planus which has gone into my mouth, lesions on my legs and body etc.... My mouth is raw every day and some worse than others. I've lost over 30lbs. in the past 7 months. I was prescribed Dexamethasone oral rinse also. This can only be used for 10 days in a row occasionally. I also have oral lidocaine rinse which is useless. It's a topical anesthetic which lasts about 4 minutes. I feel for you!

I have had OLP since 2015. Seen all the top "specialists," with no improvement. Basically there is no treatment. One of these docs told me to increase my social life! It got much worse after the covid vax, which deeply I regret taking. At this point my OLP has become permanent. Current status is-- my lips, tongue and cheeks are swollen, so much so that it interferes with clear speech. It hampers my work as a music director, and just makes it difficult to be understood in general. Also, I have a non-stop pain in the sides of my nose, which is described in scientific articles on line as OLP spreading. But again, nothing can be done. After many years, it is extremely discouraging.
Has anyone had these symptoms? Thanks J.